Pompe India > News > A father’s mission: How one man developed a drug to save the lives of his children

A father’s mission: How one man developed a drug to save the lives of his children

In 1996, John Crowley’s two youngest children received what doctors at the time believed to be a death sentence.

John and his wife, Aileen, had noticed that their daughter, Megan, who was 15 months old at the time, had not yet taken her first steps and wasn’t pulling up in her crib.

“We got Megan’s diagnosis when Patrick was 7 days old. They told us it was a rare disease, one we had never heard of, that it was fatal, that she wouldn’t live to be but a couple of years old and that also, too, Patrick, who was with us there at the doctor’s office … that he may have the disease,” Crowley, of Princeton, N.J. told FoxNews.com. “A few months later we had Patrick tested, and learned that he in fact did have Pompe disease as well.”

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